Thursday, August 25, 2011

More Thoughts on How I'm doing

Went to Salina Ortho. That was a waste.

They were not prepared to do anything for me. They read the MRI (I wonder if Dr. Nickel got to see it. I have it now). They told me that they could do nothing for me. I spent more time giving my medical history than they spent with me. They took my $30 and referred me down the line. Of course if there was anything else they could do for me. . .


When I go see the sub-specialist on Monday, 1:30 pm, I will have driven 200 miles. (That's 7 gallons of gas one way - tank full round trip - $50). I will pay $30 copay. This doctor will look at the MRIs, the X-rays and send me home - that's what Salina Ortho told me. That means we'll drive spend and still not know any more than we know today. So, I'll have to go back for another visit (that's another $80 trip - at least) to get an unknown procedure.

Just as obnoxious, the Ortho doctor refused to even give me an idea of what could be done, what it would be like if its a sarcoma (I don't want to comment on that because I don't know). And if it's a fatty tissue tumor - nothing can be done except maybe some radiation to shrink it some. Will it grow back? Will the pain lessen? Will there be side effects. Don't know. Can't say, don't care.

Have these specialist ever been human beings who have to live with anxiety, who have to live within a budget, who can't commute to Kansas City?

I'm going to call the Lindsborg Clinic and ask that they refer me to KU Medicine. Linda Branch recommended them. I think I've got a better chance for a better outcome there.

I've heard from many of my friends on facebook and elsewhere that my experience is just beginning and highly likely to get worse.

So let me be clear about my objections: I live 200 miles from Kansas City. Gas is $4.00 a gallon. I need to have some reassurance that what's happening to my leg can be at least significantly mitigated, even if not cured. I'd like to know what is likely to happen to me - and I can't drive to KC for chemo twice a week. I can't afford to be paying copays that add up to $200 per week.

I am both angry and more than a bit scared about the outcomes.

1 comment: said...

Can only give love and hugs and shared frustration. Hopefully you can get another clinic that is closer. I am appalled and angry they even had you come if they could do NOTHING.